Małgorzata Kulik, Wojciech Otrębski Funkcjonowanie rodziny z dzieckiem niepełnosprawnym w wyniku choroby genetycznej

Abstrakt

This article describes psychosocial situation of a family with genetically disabled child. Birth of a disabled child leads usually to fundamental changes in a family system. Each of family members is to learn new roles and to settle a new place in this system. Not only a place should be found for a new family member but a new lifestyle should be established as well. In the turbulences connected to diagnosis, rehabilitation and therapy one should still remember that family integration with a disabled child consists of two areas: emotional (love, attachment, acceptance) and task-oriented (participation in household members' life).